SEVEN THINGS THAT ME ABOUT FIBROMYALGIA Blindsided
As I imagine it will be true for most people, chronic disease took me by surprise. Here are seven ways that fibromyalgia changed radically (exceeded?) My life:
1. I was not prepared for the relentless fatigue
I was used to move furniture, take my kids places, cooking and cleaning my house. , Implacable Chronic fatigue ended all that. We live in a small house now, where the furniture stays more or less where it was originally placed. My children are grown and on their own. My husband does the cooking, and we have recently hired someone to do the cleaning. I just want to clarify that fatigue is not the same as being tired. When you’re tired, you get a nap or sleep well at night, and is now re-energized. With fatigue, no matter how long you sleep, no relief.
2. not anticipate loneliness
I was used to a busy household with teenagers who come and go, noise and comfort of all that brought this breast. Now that’s just my husband and I, well, it gets very lonely for me and too quiet when you are at work. Friends are too busy with their own lives, and understand it. They may think that people go and hang out with me, but the truth is that they do not. I am grateful for my sister who comes and goes with me at least once a month.
3. The purchases have become an endurance sport
He has always liked shopping, especially shopping. Now, in the days when I feel good enough to accompany my husband, usually they have to go sit in the car while he pays. My energy once it is exhausted. It can take hours and sometimes days to recover from a shopping trip of 30 minutes. I am very grateful that my husband steps carefully and do what I can no longer do.
4. The shower needs a perfect timing
I have to take a shower (when I can) at night, because I totally erased. For most people, taking a shower wakes up and gives them energy. For me, it’s the opposite. I become exhausted.
5. unmet need in the community
I am grateful for the gift of social networks. I have been connected with a community of amazing women, who are also chronically ill. It is a community of mutual suffering, understanding and compassion. Belonging to groups and facilitate Facebook has given me an important connection support.
6. I lie
Most of the time I am very aware that I am sick, but those good days, I question. Am I really sick? Really I have what they say? Maybe I’m getting better! Then the weather changes or stress enters the picture, and once again I remember the truth. I’m really sick. But I am so grateful for the good morning.
7. Get advice is not useful
I know most people come from a place of care when they make suggestions or give advice. But usually it is not useful, and I can make you feel worse. For example: maybe if the way you eat is changed, exercise more, get out of the house, get a job, you will feel better. They also want to know if you feel better, without understanding that “chronic” refers to a lifetime. It is better to try to understand that to give unsolicited advice.
I have been strengthened and challenged in ways we never could have anticipated. He has matured and made me a more compassionate person did.